Adolescents Psychological Complications of Chronic Illness «
http://www.chp.edu/greystone/mentalhealth/pcci.php | | Information from the child health library of children's hospital of pittsburgh. |
Bandaides and Blackboards «
http://www.lehman.cuny.edu/faculty/jfleitas/bandaides/ | | Supports kids , teenagers and adults who are dealing with having a medical problem. advice about teasing , what to expect in a hospital , poetry , and shared stories. |
Children and Grief «
http://www.aacap.org/publications/factsfam/grief.htm | | Discusses how children handle grief and loss and which signs indicate they have difficulty coping (aacap facts for families). |
Chronic Illness: New and Old Ideas to Care for Children «
http://cdrc.ohsu.edu/oscshn1/medicalhome/docs/med_home_final_grand_rounds.pdf | | Slide show by national center of medical home initiatives for children with special needs explains two new options: chronic care model and medical home project. |
Dealing With a Health Condition «
http://kidshealth.org/teen/your_mind/problems/deal_chronic_illness.html | | Explains teenagers how to cope , to take control , deal with others. |
Living with Childhood Illness and Disability «
http://www.cshcn.org/resources/living.cfm | | Resources page by the center for children with special needs includes handouts on safety , disability act , school preparation , the internet. |
Pain and Chronic Illness in Children «
http://www.touchbriefings.com/pdf/14/lth031_r_cowley.PDF | | Short paper on the importance of pain management. |
Parental Advise on Coping with Chronic Illness of your Child «
http://www.parenting-ed.org/handout3/Specific Concerns and Problems/coping with chronic illness.htm | | Tips how to explain , deal with emotions , use discipline , keep a family routine , and cope with strangers. |
Promoting Resilience in Youth with Chronic Conditions and their Parents «
http://www.allaboutkids.umn.edu/kdwbvfc/FamilyMonograph.PDF | | Paper on family centered care , describes impact , principles , assessment , healthy family functioning. |
Shared Vision «
http://pediatrics.aappublications.org/cgi/content/full/105/1/S2/277 | | Complete article (also as pdf) on longterm needs , financial and medical planning. |
Starbright Foundation «
http://www.starlight.org/site/c.fuLQK6MMIpG/b.1038035/k.BDF4/Home.htm | | Features empowerment programs for seriously ill children. includes chatrooms , videos , comic books , and cd-roms. |
Teenagers and Coping with Chronic Illness «
http://www.irishhealth.com/?level=4&id=455#top | | Tips and strategies for parents with newly diagnosed teenagers. |
The Child With a Long-Term Illness «
http://www.aacap.org/publications/factsfam/illness.htm | | Aacap facts for families describes the risk for developing associated emotional problems as the child must must cope with a disease that is here to stay and may even get worse. |
What is a Chronic Illness? «
http://endoflifecare.tripod.com/kidsyoungadults/id23.html | | Explains to children what their ill friend or relative experiences and what they can do themselves. |
Youth in Transition «
http://www3.bc.sympatico.ca/steeksma/Medical/transition.htm | | Article on transitions in youth with chronic health disorders advises their caregivers in assisting to gradual independence and self-management. |
