Batten Disease Information Page «
http://www.ninds.nih.gov/disorders/batten/batten.htm | | Information sheet compiled by ninds , the national institute of neurological disorders and stroke. |
Batten Disease Support and Research Association «
http://www.bdsra.org/ | | Bdsra goals , support groups , local chapters , and resources for parents and families of batten disease patients. |
Nathan's Battle «
http://www.nathansbattle.com | | Details a boy's fight against batten's disease and dedication to promote awareness to help find a cure. |
Sacha's Story «
http://www.sachasstory.co.uk/ | | Personal story of a young girl in the uk , includes journal , blog and information about the disease. |
The Luke and Rachel Batten Foundation «
http://lrbf.org | | Created to engage in education and medical research toward diagnosis , treatment and/or cure of juvenile neuronal ceroid lipofuscinosis (batten disease) and to assist persons with the disease. |
The Natey Foundation «
http://www.nateyfoundation.org/ | | Information for parents and families of battens victims. |
