Ectodermal Dysplasia Society «
http://www.ectodermaldysplasia.org/ | | Information about the organization as well as the ed condition. includes links , news articles and contact details. |
National Foundation for Ectodermal Dysplasia «
http://www.nfed.org/ | | Ed organization based in north america offering information/advice to individuals and supporting scientific research. includes a newsletter , publications , faqs and a list of services. |
NORD: Ectodermal Dysplasias «
http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Ectodermal%20Dysplasias | | Offers synonyms , a general discussion and resources. |
The Andy Fund «
http://www.andy.org.mx | | Describes the health condition of a boy who was born with ectodermal dysplasia with immune deficiency caused by a mutation on the fourth part of the nemo gene. |
The CaF Directory «
http://www.cafamily.org.uk/Direct/e14.html | | Information about the ectodermal dysplasia disorders , the inheritance patterns and pre-natal diagnosing. |
The Ectodermal Dysplasia Mailing List «
http://hometown.aol.com/charliein/ed/home.html | | Includes instructions on joining the list , faqs and links to further resources. |
