Cristina's Castle in the Clouds «
http://www.homestead.com/cristinascastle/index.html | | Information and support for those interested in a skin disorder called epidermolysis bullosa. message board and also a list of camps for children with this disorder. |
DebRA Australia, Queensland Branch «
http://www.debraqld.org | | Features disorder information , organization background , publications , photo gallery , and information about the nsw branch. |
DebRA Canada «
http://www.debracanada.org/ | | Includes articles , news , and information about this genetic disorder. |
DebRA International «
http://www.debra-international.org/ | | Dystrophic epidermolysis bullosa research association. a voluntary , non-profit organization dedicated to creating awareness and providing support for families affected by epidermolysis bullosa (eb). includes treatment and care information , latest research |
DebRA of America «
http://www.debra.org/ | | Offers information , news , newsletters , support , and resources. |
DebRA UK «
http://www.debra.org.uk/ | | Features organization background , information about the disorder , fundraising and research details , and news. |
EB Info World «
http://www.ebinfoworld.com | | Information , mailing list , pictures , and help for new parents. |
EB Medical Research Foundation «
http://www.ebkids.org/ | | A volunteer , nonprofit foundation dedicated to the support of medical research about this disorder. includes information about research , videos , and organization information. |
Epidermolysis Bullosa - Through the Eyes of a Patient «
http://www.ebpatient.com | | A young woman presents medical information , research updates , photographs , recipes , and support group listings , as well as her own experiences with the condition. |
International EB Forum «
http://www.internationalebforum.org/ | | Includes downloadable articles and booklets as well as links of interest. also offers password-protected forums for professionals. |
Yahoo! Groups: EBworld «
http://health.groups.yahoo.com/group/EBworld/ | | Mailing list support group for parents , patients , and those interested in learning about disease. |
