Carolina Fragile X Project « http://www.fpg.unc.edu/~fx/ | | A series of studies examining the impact of fragile x syndrome (fxs) on individuals , families and the agencies that serve them. |
Conquer Fragile X, Inc. « http://www.conquerfragilex.org | | Creating a virtual research center in israel to find a cure. |
Fragile X Association of Australia « http://www.fragilex.org.au/ | | Information on this disease , medical aspects , education , references , contacts and what's new in australia |
Fragile X Association of Southern California « http://www.fraxsocal.org | | Fragile x syndrome is the leading inherited cause of developmental disabilities and mental impairment worldwide. it affects 1 in 2 , 000 males and 1 in 4 , 000 females. it is estimated that 1 in 259 females are carries of the premutation. |
Fragile X Research Foundation of Canada « http://www.fragile-x.ca/ | | Registered charity publishes a newsletter , invites applications for research grant , and explains how to donate or join. |
Fragile X Syndrome « http://home.coqui.net/myrna/fragile.htm | | Single page on recognition of the condition in young children. |
Fragile X Syndrome - Diagnostic and Carrier Testing « http://www.faseb.org/genetics/acmg/pol-16.htm | | A policy statement from the american college of medical genetics. |
FRAXA Research Foundation Home Page « http://www.fraxa.org/ | | Non-profit organization run by parents. fighting to find a cure for fragile x syndrome and helping fragile x family's. |
Living with Fragile X « http://fragilex.ca | | One family's account of raising 3 children with fragile x. |
Maryland Fragile X Resource Group « http://www.mdfragilex.org/ | | A community of families in and around the washington-baltimore metro area that have children affected by fragile x syndrome. includes news , upcoming events , and resources. |
Online Support Group « http://groups.yahoo.com/group/fragilex/ | | Support group for family's who are dealing with fragile x syndrome. |
Pediatric Oncal « http://www.pediatriconcall.com/fordoctor/diseasesandcondition/fragile_x.asp | | Information presented about fragile x syndrome , including the diagnoses and clinical manifestations. |
The National Fragile X Foundation « http://www.fragilex.org/ | | Features information about the disease , its treatment , and inheritance. |