" China Doll" Syndrome «
http://moondancer.150m.com/ehlers.html | | Personal site of a patient with vascular type eds. moon relates how she was diagnosed after one hospital missed a double aneurism - fortunately a second hospital discerned the problem before it was too late! pictures included. |
American Massage Therapy Association - The Hypermobile Client/Therapist «
http://www.amtamassage.org/journal/olcott2.html | | Hypermobility can be a problem for both massage therapists and clients , amta discusses solutions therapists can readily employ. |
Arthritis Foundation Disease Center: Ehlers-Danlos Syndrome «
http://www.arthritis.org/conditions/diseasecenter/eds.asp | | Symptoms , diagnosis and treatment of the condition. |
Arthritis Insight-EDS Tips for Surgery «
http://arthritisinsight.com/medical/surgery/eds.html | | If you or a family member with eds needs surgery , read this and share it with your doctor. |
Coalition for Heritable Disorders of Connective Tissue «
http://www.chdct.org | | Research organization for genetic connective tissue disorders. |
Department of Pathology «
http://www.pathology.washington.edu/clinical/collagen/guidelines/ehlersdanlos.php | | Information regarding laboratory testing for different eds types. also includes limited information on tenascin-x deficiency syndrome , a recently discovered disorder that shares symptoms with eds. |
Diagnose-Me: Treatments: Prolotherapy «
http://www.diagnose-me.com/treat/T85233.html | | Some eds patients have obtained excellent results with prolotherapy treatments. |
EDS Living - a Journal «
http://edsliving.livejournal.com/ | | Learn what it's like to live with eds for this woman and her children by following her online journal. |
EDS Today «
http://www.edstoday.org/ | | The newsletter for , by , and about people with the condition. includes featured articles , columns , and contact information for support groups worldwide. |
Ehlers Danlos Foundation of New Zealand «
http://www.edfnz.org.nz | | Support for sufferers of the ehlers-danlos syndrome and related hypermobility syndrome and provides some information for the medical profession and general public. |
Ehlers-Danlos Hope «
http://ehler.8m.com | | A syrian patient gives a personal plea for better medical support and research. |
Ehlers-Danlos National Foundation «
http://www.ednf.org/ | | American nation-wide support and information to those affected by eds. includes many articles , message boards , chat room , information for medical professionals , and regional support groups. |
Ehlers-Danlos National Foundation - Michiana Branch «
http://smackdabdesign.com/mednf/ | | Support group for individuals and families from michigan and indiana who have the condition. meetings are held in south bend , indiana. includes schedule and maps. |
Ehlers-Danlos Syndrome Information «
http://www.orthop.washington.edu/arthritis/types/ehlersdanlos/01 | | A series of short articles regarding genetics , diagnosis , treatment , and coping for people with eds from the university of washington's orthopedics and sports medicine department. |
Ehlers-Danlos Syndrome Medical Information «
http://www.medicinenet.com/ehlers-danlos_syndrome/index.htm | | Doctor-produced information on the different types of eds , including tenascin-x deficiency; treatments , pregnancy considerations , and more. |
