Carnitine Palmitoyltransferase Deficiency «
http://www.spiralnotebook.org | | Newsletter for health care professionals and patients interested in cpt deficiency , a mitochondrial disorder of fat metabolism that causes muscle breakdown. |
Center for Inherited Disorders of Energy Metabolism (CIDEM) «
http://www.cwru.edu/med/CIDEM/cidem.htm | | A group of inter-disciplinary , clinical diagnostic laboratories which focus on disorders of mitochondrial function at case western reserve university. |
Foundation for a Cure for Mitochondrial Disease, Inc. «
http://mitocure.org | | Fundraising for a cure for mitochondrial disease such as melas , merf , narp , and leighs syndromes. |
Mitochondrial Disease in Children «
http://www.kathleensworld.com/mitochon.html | | All seven of kathleen's children have mitochondrial encephalomyopathy , and two of them have hearing loss as a reult. |
Mitochondrial Disorders Foundation of America «
http://www.familyvillage.wisc.edu/lib_mito.htm | | Support group for mitochondrial disorders. |
Mitochondrial Myopathies «
http://www.ninds.nih.gov/health_and_medical/disorders/mitochon_doc.htm | | An information sheet compiled by ninds , the national institute of neurological disorders and stroke. |
Nijmegen Center for Mitochondrial Disorders «
http://oase.uci.ru.nl/~ncmd/ | | Information about the facility as well as diagnostics and research. |
United Mitochondrial Disease Foundation «
http://www.umdf.org/ | | To promote research for the cure and treatment , and to provide support to families. the umdf offers a library , patient registry , support information , conferences , research and grant updates , and a special section for physicians. |
