Children's Hospital Medical Center of Cincinnati Tuberous Sclerosis Program «
http://www.cincinnatichildrens.org/Programs_Services/229/index.asp | | Organized in 1993 to assist in the medical care of children and adults with tuberous sclerosis. |
Danielle's Website «
http://danielle-website.co.uk | | Personal story of a child who has the condition , tuberous sclerosis. contains links and photos. |
Information and support for persons affected by Tuberous Sclerosis Complex in Canada. «
http://www.tscst.org | | Site includes contact e-mail sites for board members across canada , fact sheets about tsc , a forum for sharing information , and portions of the tscst newsletter , connections. |
Kolten's Tuberous Sclerosis Page «
http://www.kolten.homestead.com/Kolten.html | | Describes his seizures and surgery. |
Matthew's Site for Tuberous Sclerosis Awareness «
http://www.angelfire.com/la3/tsc/ | | Personal journal of a mother focused on her son's rare genetic disorder , which causes tumors in multiple parts of the body and causes neurological symptoms. includes patient stories. |
NORD: Tuberous Sclerosis «
http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Tuberous%20Sclerosis | | Offers alternative names , a general discussion and further resources. |
Pediatric Oncall- Tuberous Sclerosis «
http://www.pediatriconcall.com/forpatients/CommonChild/tuberous_sclerosis.asp | | Offers commonly asked questions about this disease. |
Team Tamara «
http://www.team-tamara.org | | Nonprofit dedicated to raising awreness about tuberous sclerosis complex; raising fund for the children's hospital of phila. , the epilepsy foundation , the tuberous sclerosis alliance. includes info links and tamara's health updates. |
Tuberous Sclerosis «
http://www.ninds.nih.gov/health_and_medical/disorders/tuberous_sclerosis.htm | | A short information sheet on this disease compiled by ninds , the national institute of neurological disorders and stroke. |
Tuberous Sclerosis - Lisa's Site «
http://www.title14.com/ts/ | | An incurable genetic condition that causes tumors to grow in various places in the body. |
Tuberous Sclerosis Alliance «
http://www.tsalliance.org/ | | Us advocacy and support organization provides information about tuberous sclerosis complex , research on its genetics and treatment , and support for patients and their families. |
Tuberous Sclerosis Association «
http://www.tuberous-sclerosis.org/ | | Uk charity supporting sufferers , promoting awareness , and seeking the causes and best possible management of this genetic disease. resources for patient families and information on this condition. |
Tuberous Sclerosis Fact Sheet «
http://www.ninds.nih.gov/health_and_medical/pubs/tuberous_sclerosis.htm | | Developed by the national institute of neurological disorders and stroke (ninds). |
