International Rett Syndrome Association (IREA) « http://www.rettsyndrome.org/ | | The mission of the irsa is: to support and encourage medical research to determine the cause and find a cure for rett syndrome , to increase public awareness of rett syndrome , and to provide informational and emotional support to families of children w |
National Institutes of Health « http://www.ninds.nih.gov/health_and_medical/disorders/rett_doc.htm | | Information in rett syndrome , treatment and prognosis. |
Rett Angels « http://www.rettangels.org | | Rett syndrome forum and online support group sharing personal stories and information. |
Rett Language « http://www.geocities.com/pflowerett/ | | One family's experience with rett syndrome , applied behavioral analysis and discrete trial teaching. |
Rett Syndrome « http://www.autism.org/rett.html | | The autism research institute distributes an information packet on rett syndrome. |
Rett Syndrome Association of Ireland « http://www.rettsyndromeireland.com | | A support group for the victims of rs and their families. read about the organization and the disorder. |
Rett Syndrome Association UK « http://www.rettsyndrome.org.uk/ | | National charity provides support to patients , their families and carers. features details of the condition , research findings , and clinics , as well as faq and an events calendar. |
Rett Syndrome Fact Sheet « http://www.ninds.nih.gov/health_and_medical/pubs/rett.htm | | An in depth look at this syndrome prepared by the national institute of neurological disorders and stroke (ninds). |
Rett Syndrome Research Foundation « http://www.rsrf.org | | Promotes biomedical research for the treatment of rett syndrome , often misdiagnosed as autism and hypotonia. offers detailed information , links , studies , support groups , and information on the rett syndrome gene mecp2 recently discovered. |
The Sarah Varon Foundation for Rett Research « http://www.sarahvaronfoundation.org/ | | A family dedicated to finding a cure for rett sydrome. find announcements , photos , and an overview of the disease. |