Chase's Story «
http://www.pierrerobin.com | | Personal account of one child's experience of this condition. includes photographs. |
Contact a Family: Pierre Robin Syndrome «
http://www.cafamily.org.uk/Direct/p24.html | | Main features of the condition and possible causes. |
NORD - Pierre Robin Syndrome «
http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Pierre%20Robin%20Syndrome | | Sample report , plus links to organisations. [fee required for full report] |
Pierre Robin Network «
http://www.pierrerobin.org | | Provides general information about the condition , including genetics , issues and a glossary. also offers an email group , message board , and personal accounts. |
