«Top»  : «Health»  : «Conditions and Diseases»  : «Rare Disorders»  : VATER Syndrome Sites
EA/TEF Family Support Connection «
http://www.eatef.org/
Site Details: http://www.eatef.org/
  Formed by and for families of children born with ea/tef (esophageal atresia and tracheoesophageal fistula) and the medical professionals who treat them.
Tef/Vater International «
http://www.tefvater.org
Site Details: http://www.tefvater.org
  Support group and information source for families with children born with vater , esophageal atresia and/or traceoesophageal fistula.
The Vater Forum «
http://www.thevaterconnection.org/
Site Details: http://www.thevaterconnection.org/
  Support organization created by parents of children diagnosed with vater association. [registration required]
Tracheo-Oesophageal Fistula (TOF) «
http://www.tofs.org.uk
Site Details: http://www.tofs.org.uk
  Support organization for children with tof and their families. includes information about the condition , treatment and outcomes.
VACTERL Association Support Group «
http://www.vacterl-association.org.uk
Site Details: http://www.vacterl-association.org.uk
  Run by families , giving information support and help on vacterl association , vater syndrome and related problems.
VACTERL Association Wiki «
http://en.wikipedia.org/wiki/VACTERL_association
Site Details: http://en.wikipedia.org/wiki/VACTERL_association
  Wiki based on vacterl association. this is a publicly maintained reference to this rare condition , allowing anybody to update.
VACTERL Network «
http://www.vacterlnetwork.org/
Site Details: http://www.vacterlnetwork.org/
  Network of families supporting both adults and children , sharing resources , help and information.
VATER Association «
http://www3.ncbi.nlm.nih.gov/htbin-post/Omim/dispmim?192350
Site Details: http://www3.ncbi.nlm.nih.gov/htbin-post/Omim/dispmim?192350
  Description and clinical synopsis , plus links to articles and research abstracts.
Website of Aled Thomas Griffiths «
http://www.aledgriffiths.co.uk/
Site Details: http://www.aledgriffiths.co.uk/
  A collection of information , events and pictures detailing the life story of aled thomas griffiths , who was born with vacterl association.
Zoe Lambert «
http://www.zoelambert.com
Site Details: http://www.zoelambert.com
  Personal account of this condition , and surgery to receive titanium rib implants.


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