Alliance of Genetic Support Groups «
http://www.geneticalliance.org/ | | National coalition of consumers , professionals , and genetic support groups to voice the common concerns of children , adults , and families living with , and at risk for , genetic conditions. |
Chromosome 22 Central «
http://www.nt.net/~a815/chr22.htm | | Support group for families who have children with any chromosome 22 disorder , including trisomies , cat eye syndrome , translocations , deletions 22q11 , 22q13 , vcfs , digeorge syndrome , rings and unique malformations. |
Chromosome Deletion Outreach, Inc. (CDO) «
http://www.chromodisorder.org/ | | Non-profit voluntary support group for families affected by rare chromosome disorders. |
Chromosome Help-Station «
http://www.chromosomehelpstation.com/ | | Information on rare chromosomal disorders. support and advice for families. |
Cornelia de Lange Syndrome (CdLS) Foundation Outreach «
http://www.cdlsusa.org | | Family support organization which exists to ensure the early and accurate diagnosis of cdls , promote research into the causes and manifestations of the syndrome , and help people with a diagnosis of cdls , and others with similar characteristics , make infor |
Distal Trisomy 10q Families «
http://trisomy10q.darylanderson.com | | Support for families of children with distal trisomy 10q. family stories , contacts , other information. |
Forum for Patients with Myotonic Dystrophy 2 «
http://groups.yahoo.com/group/MyotonicDystrophy2 | | A forum for sharing information , increasing public awareness , and building advocacy for further research for patients diagnosed with myotonic dystrophy type 2. |
Ideas «
http://idic15.org/ | | A support group for families and professionals interested in the chromosomal condition known as isodicentric 15 (formerly inverted duplication 15). |
Lafora body disease research talk «
http://groups.msn.com/laforabodydiseaseresearchtalk | | This is a discussion group about lafora body disease. |
Online Genetic Syndrome Support Groups «
http://members.aol.com/dnacutter/sgroup.htm | | Sites are listed alphabetically by disease/condition. |
Oto-Palatal-Digital Syndrome Family Resource Network «
http://www.geocities.com/opdsyndrome/ | | Resources , articles , support and general information on the rare disorder , oto-palatal-digital syndrome. |
Parents of Polydactyly and Webbed Children «
http://p200.ezboard.com/bparentsofpolydactylychildren | | A support board for those parents of children born with extra toes/fingers as well as webbing. a place to learn new information and make friends with others |
Peter's Anomaly Support Group «
http://www.petersanomaly.org/ | | An online support group for people dealing with peter's anomaly. |
Philadelphia, PA. , Internet Support For Invisible/Hidden Disabilities «
http://groups.aol.com/_cqr/edsphilly3?mmch_=0 | | The philadelphia , pa. , internetsupport for invisible/hidden disabilities. |
S. O. F. T. «
http://www.soft.org.uk | | A united kingdom support organisation for parents of infants with trisomy 13 and 18 and other related disorders. |
